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Saturday, August 25, 2012

The girls

Well, the girls are in the forefront again.  Yesterday I had had an appointment with my surgeon. Yes, it is another round of appointments and the like. Because I am considered to be "high risk", I will be closely monitored throughout all of this. Because of my age and the early detection of my breast cancer, I will be monitored for the rest of my life. I will be able to access medical services regarding all of this very quickly. That is very good to know.

I did find out that my oncologist had decided to treat me with chemo because I was high risk. I was pleased to hear that, but this past couple of years have been met with so much diffculty and resistance. But, I am blessed. I know that so much has been going on and to get some peace and tranquility in all of this is so needed. I do not especially feel all that excited about having the girls displayed for everyone to see once again. No, I am not thrilled.

So, Doctor had given me a complete rundown of what might be going on as well as what might not being happening. I will be scheduled for another exam--an MRI. From what I understand, the exam will be able to have more conclusive imagery that a mammogram and ultrasound does not pick up. Certainly, my thoughts are running wild. If there are any cells that were missed, the MRI could determine that. However, when I had had the aspiration, everything was good. I am concerned, but I have to tell myself that I should not be concerned. I am in excellent health and I am well monitored for all my health conditions. I am also a strong advocate for what is going on. I am working diligently to be very open and vocal. Sometimes, very vocal and upfront. How am I supposed to be?

I was asked something about an aspect of my care. I was asked if I was sent to Physical Therapy for recovery? I said no. I was so very upset. I have not received a lot of aspects to my care and I have wished for a lot. I am not receiving anything and I have been working to develop my own care plan. I have worked very carefully to build my own dietary regimine; careful to develop my own exercise program with self-imposed limitations to lifting, weightbearing exercises and to continue to work and stretch out my muscles after the surgery.

One thing that the nurses have been amazed at was that I did not tell my clients what was going on. Nothing was discussed at work with my evening job and my clients from my day job did not know what was going on. I want to keep it that way. I had never gone to either boss and asked for special priveledges. I took very little time off from work because I needed the money and to build my finances for my taxes. I had anticipated that I would get a very good income tax return so that I would be able to have money for what I needed--clothes, boots, pants/dungarees, etc. I had to think ahead because I had no idea what was to be expected from my outcome. Now, I have insurance and I can get what I need to have. I am pleased with who I have. I have an excellent team of folks; but, one thing as well. They know that they have a spitfire of a patient. I will not just simply accept the okay. I will ask questions and I will be calling and pressing and pushing. When we have to be our own advocate, we must do that. It is not always easy or fun to do, but it has been done. For all of this time, it is very important for me to do.

Must keep going.

Pressing on. Pushing in. Advocating on.

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