I am continuing to push forward. I am angry and resentful at the lack of services that I have not received. I have to double check on my own appointments without a phone call to remind me or any followup from medical staff. I have had to work my own pre-operative and post-operative care and reminders. I have had to complete my own assessments to determine where my mental health has been. I have had to be my own dietitian for this care. When my primary had sent out the referrals, they were all wrong. I was sent to the wrong oncologist's office--they did not accept my insurance. Then I had filed a complaint about that. Then I was sent to a cancer treatment center over an hour away. I had indicated that it was not going to be possible because it was too far away and I did not know anyone who would be willing to devout that much time for my "care". So, then I filed another complaint. Then I was sent BACK to the original oncologist and the doctor at that clinic had to call the primary and indicate that they would not accept this unprofessional behavior. I was able to get into another oncology office where they have accepted me as a charity case because I did not get the referral to the proper clinic. If I had waited any longer, it would not have made any difference. How much longer could I have waited? How much longer would I have waited?
This is why I have started this blog. There are so many other people out there that have gone through this. We know that President Obama has said "health insurance for all" but it is not feasible. When will medical offices start treating us like people first then patients. This has been a horrible experience and it is not over yet. I will still need to be heading toward chemotherapy and radiation. But when? Your guess is as good as mine. There are more phone calls that I have to make.
I am looking forward to seeing the end of the tunnel.
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